Stage 2, grade 3, triple negative ductal carcinoma (breast cancer) Diagnosed at 29 years old
On
February 27, 2013, my life changed forever. I was diagnosed with stage
2, grade 3, triple negative ductal carcinoma (breast cancer). In mid
January I had a sharp pain in my left breast. I reached over and grabbed
the area of my breast where the pain was. That is when I felt the lump.
I had never had a lump of any kind before. However, I knew that hormonal
changes could cause cysts in my breast and this day was the last day of
my menstrual cycle. Regardless of my thoughts about hormones, I decided
to call my doctor the next day. The nurse summed it up as too much
caffeine or hormones but told me I should call back in 2 weeks if it
didn't go away or if it got larger. I made it about a week before the
thought of what the lump "could be" began to drive me crazy. I called
back and said that it had gotten bigger. I had an appt for the next day.
When I went in to see my OBGYN he did an exam of the area where I felt
the lump. At that moment he also found another lump under the original
finding. He figured it was just cysts but decided to schedule me for a
mammogram anyway to be sure. It took a month to get in for my
mammogram....
On the day of my mammogram I called the
nurse and asked what the procedure was for getting my results after the
mammogram. I remember very clearly her stating that after I left the
breast center, they would call me to give me the results. But, if for
some reason they saw anything that looked abnormal, they may do an
ultrasound and the doctor would come in and take a look. I remember the
nurse doing the mammogram as being very nice and talkative during the
mammogram. Until...she finished and said, " I'm going to take you next
door for an ultrasound and let the doctor come take a look." At that
moment, my heart sank. The doctor came in and told me that the areas
didn't look like cysts but not necessarily like cancer either so they
wanted to do a biopsy to see what the areas were.
A week
later I went in for my biopsy. By this time, the area around my
aureola/nipple had began to sink in as if something were pulling the
skin from the inside. I had read enough on the Internet to know that
this was NOT a good thing. During the biopsy the nurse nicely asked me
if I had noticed that area...I just said yes and closed my eyes. I think
that moment was her trying to prepare me for the worst news of my life.
After the biopsy they did another mammogram to make sure they had
biopsied the right spots. This time the mammogram showed a third spot,
which was not there a week before. The next day was Thursday Feb 27.
Maybe it was fate or fear but for some reason my husband and my mother
came with me to get my results. Normally I would have been alone. I had
been a nervous wreck all day waiting. Deep down I knew I would not get
good news but at the same time I kept telling myself, "you have no
family history of cancer and you are only 29 years old! It will just be
cysts." The doctor who had done my biopsy came in and told me the
original area that I had found was DCIS, dictaphone carcinoma in situ.
Meaning it had not spread beyond the duct, more like a precancerous site
(we found out later that was wrong, it was invasive). The other spot,
and I quote the doctor, "it's full blown cancer." Invasive ductal
carcinoma. This means it has spread outside of the duct and into
surrounding tissue.
I was in disbelief. I looked at my
mother. She just put her head into her hands. My first thought was, "ok,
now what do we do?" You often hear of people taking bad news and taking
it like it's just fine. I felt like that. I realized very quickly that
no amount of tears or fear would get me through it. Also, I had 2
beautiful daughters and a family to stay strong for. I immediately gave
my fear and worry over to God. If anybody was going to get me through
this dark time in my life, it would be my Ultimate Healer, God.
After that moment my world became a whirl wind. I was immediately
introduced to a woman by the name of Robbi. I should have known
something was wrong when we were in the room waiting for the doctor and a
woman with breast cancer pins on her name tag was standing patiently by
the door, folder in hand. Robbi, from that point in was sort of a
liaison for breast cancer patients. She helped walk me through the
treatment process and made me feel at ease many times. Robbi walked me
straight from the breast center up to the surgeons office to discuss my
treatment options. The best memory I have of that appointment was when
my husband looked the doctor straight in the eye and said, "doc, if this
were your wife or your daughter, what would you do?" His instant reply
was, "begin chemo."
The following day, Friday, I waited for
a phone call from Robbi telling me when I could meet with an
Oncologist. She called around 11am and told me I could meet with Dr.
Heller but he was across the Bay (45 min away from where I was). I had
one hour to get there to meet with him. My husband and I jumped in the
car and headed that way. We discussed my treatment plan with Dr. Heller.
He explained the chemotherapy process and the side effects I may have.
Reality was beginning to set in. Before I left his office, I had another
call from my surgeons office telling me that I had a few more tests
that I needed to have. I had to be back to Mobile in an hour. That day
we seemed to be so rushed. Everything is kind of a blur.
The
following Monday I had a PET scan, echocardiogram, MRI and blood work.
On Tuesday I had a small operation to have my port put in. It was placed
on my chest right beneath my collar bone. That was the day I found out
the cancer cells were Triple Negative....A worse case scenario in my
eyes. Triple negative means that my cancer cells are not fed by
hormones, therefore, it cannot be treated with hormonal therapy as well
as chemo. Chemotherapy would be the only treatment for me. My tumors (3
all together) were also "grade 3" which means the cells were rapidly
growing. Stages range from 1-4, 4 being the fastest and most aggressive.
I was stage 2 because the size of my tumors. Although there were 3
spots, they connected to each other which made my whole tumor 6cm.
The following day, less than one week from diagnosis, I began my
long 16 week journey with chemo. I had 4 treatments of Adriamycin and
Cytoxin followed by 4 treatments of Taxotere. I went every other
Wednesday for chemo. On Thursdays I would have to go back for a shot
called Neulasta. It was a white blood count booster shot that was
supposed to help my counts stay up. The chemo kills bad cells as well as
the good so this shot would help. However, that shot, that only took 5
seconds to administer, had side effects that lasted 2-4 days! I think I
may have felt ok if I had only had chemo but that shot really knocked my
feet out from under me. It honestly felt like I had been beaten with a
wooden bat every time I had that shot. Some other side effects I endured
during chemo were, hair loss (which began the morning before my second
round of chemo) severe fatigue, nausea, diarrhea, constipation,
shortness of breath, my fingernails began to die, loss of taste (my
tongue felt numb), constantly watering eyes (people always thought I was
crying).
During my time on chemo I became a new person. I
found Faith that I never knew I had. I found strength in my friends and
family. I sought Gods peace and found it. I felt His presence with me
almost constantly. I truly believe that I had so many people praying for
me that, that is what gave me the feeling of constant peace. Total
strangers would stop me in stores and pray with me. God always found a
way to make me hear Him. His timing was ALWAYS perfect. Just when I
would get down and depressed, he would send an angel or a message to
open the eyes of my heart.
My time with chemo ended in mid
June. I was scheduled to have a mastectomy in July. I went back and
forth on if I should have the mastectomy or if I should just have a
lumpectomy with radiation. I met with a plastic surgeon to discuss
reconstruction options. So many decisions to make... This was my most
difficult time. I was depressed and afraid of making the wrong
decisions. "What ifs" played over and over in my mind. What if I have a
mastectomy and then have to have radiation? Would I be able to go
through the reconstruction process that came with that? What about
lumpectomy with radiation? What are the chances of cancer coming back
with either choice? What is the best choice? All the doctors would tell
me it was my decision but ultimately they all agreed that a lumpectomy
followed by radiation would be best for me. So, that's what I went with.
The day before my mastectomy was to occur, I changed my surgery plan
and had the lumpectomy. Three weeks later I began radiation. Six weeks,
five days a week, equaling 30 radiation treatments.
My life,
my family has been changed forever. I will forever be a breast cancer
survivor and I'm proud of that. I hope that my journey with breast
cancer will inspire people to find their own strength in difficult
times. I pray that my daughters will remember the strength and faith I
have had throughout this battle. Most of all, I hope that my journey
will bring others closer to God. From day one I have known that God did
not "do" this to me. He "allowed" this to happen. He was testing my
faith and giving me a purpose. I truly believe my purpose in this world
at this time in my life was to being others closer to Him. He used me to
reach someone else. If only one persons life has been changed through
my journey, then it was all worth it. My life has forever been changed.
My message to other young women is to be your own advocate. Don't
believe that you are ever to young to have breast cancer. Don't ever
believe that it "can't" happen to you. Listen to your body, be aware of
changes and follow your instincts to get it checked out. The worse case
scenario is not finding out that you have cancer, it's finding out you
have cancer but waited to long to be treated. I thank God for my healing
and I am happy to end this chapter of my life.
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